We have compiled links--- and a national
listing of--- companies, support organizations, federal agencies, and
information sources all related to complications in pregnancy.
Please contact us if you have found a useful resource that you would like to see
on this list.
Ask NOAH Ask NOAH about Pregnancy - a good FAQ for pregnancy. Also links to other resources.
Doulas Of North America
Information about the services provided by doulas and a nationwide listing of members.ePregnancy.com
From before conception to after birth, ePregnancy provides you with articles, interactive features, forums and other ideas and resources to keep you informed and inspired.FamilyandHomeNetwork.com
Non-profit organization, founded in 1984 as Mothers At Home, advocating for parents and children concerning their needs for generous amounts of time together. We provide support, education and networking to parents who forgo or cut back on paid employment to spend time with their children of all ages, and to affirm the worth and dignity of this choice. Publisher of award-winning, advertisement-free monthly journal, Welcome Home.Familyweb.com FamilyWeb's goal is to provide an informative place for families to gather from around the world. We just added a section on birth stories, so be sure to check it out. My favorite page is the donations page, but I suspect I'm alone with that pick. Donations can be tax deductible, so if you have a little extra money, please have a look. If you search through our other pages, you'll find pregnancy and parenting information in the FAQs and pregnancy sections.
Giving birth by cesarean section
An over-view of a cesarean section from the Medical Advisory Board of Babycenter.com1001 Free Things for Parents
Free Things for Parents including BabyCoupons!A Place To Remember
Offering uplifting support materials and resources for those who have been "touched by a crisis in pregnancy or the loss of a baby.
http://www.aplacetoremember.com
To Contact therm by mail or phone:
A Place To Remember
1885 University Avenue
Suite 110
Saint Paul, MN USA 55104
Toll-free 1-800-631-0973 or 651-645-7045
FAX 651-645-4780For Teen Moms Only - P.O. Box 962, Frankfort, IL 60423-0962. (815) 464-5465.
www.olen.com
An Interactive Pregnancy Calendar builds a day-by-day customized calendar detailing the development of your baby from before conception to birth. The pregnancy calendar should be seen as a general guide: each woman's pregnancy is unique, and baby's develop slightly faster or slower.La Leche League International - international, nonprofit, nonsectarian organization dedicated to providing education, information, support, and encouragement to women who want to breastfeed. (847) 519-7730
You can sign up for their newsletter hereNetNurse - Matria Healthcare, Inc., the leader in comprehensive obstetrical homecare provides NetNurse to address questions about your healthy pregnancy and other health conditions.
Mining Co Pregnancy/Birth
http://pregnancy.miningco.com/Pregnant-Tips.com
http://http://www.pregnant-tips.com/OurGurus.asp
Pregnant-Tips is a well organized site with information on a variety of pregnancy topics.http://www.ncbi.nlm.nih.gov/PubMed/ National Library of Medicine Pub Med
National Library of Medicine's search service to access the 9 million citations in MEDLINE and Pre-MEDLINE (with links to participating on-line journals), and other related databases.
Operation Special Delivery
Operation Special Delivery is a program for military families that are expecting a child and have been separated to due deployment to active duty. We have doulas across the country who are willing to volunteer their services to women while their partners are away.The Parent's Page Resources for parents-to-be, as well as parents of infants and small children.
Parenthoodplace.com - Founded by Parents for Parents. This live community is run by one of the most experienced internet parenting teams on the web. They host discussion boards & chat, including the Sidelines Pregnancy boards and Sidelines chat room. Live 24/7 chat rooms, that are secure, filtered, and monitored. A great way for mom's on bedrest to spend their time in bed with a laptop meeting parents & parents-to-be from around the globe. The site and discussion areas include Pregnancy, Babies, Toddlers, Birth Clubs/Playgroups, Recipes, Health, Gardening, and many more.
The Parents Place, operates under the belief that parents are the best resource for other parents: articles on pregnancy, breastfeeding, baby, adolescence, parenting twins, step-parenting, single parenting, fathering, children's health and education, family activities, and more.
Pregnancy Today
http://pregnancytoday.comSIDS Information
Information pamphlets (or read on-line)about Sudden Infant Death Syndrome from the National Institute Of Child Health & Human Development.Ultrasound and other prenatal diagnostics tests
R. Harold Holbrook Jr. M.D. Associate Professor Division of Maternal-Fetal Medicine Department of Gynecology and Obstetrics Stanford University Medical Center Stanford Med Center OB's and Pediatricians. Information on prenatal tests, for those of you who have a need to know.StorkNet
http://www.storknet.com/Stork Radio
http://www.storkradio.com/
Stork Radio sells and rents Fetal Doppler Systems so you can listen to your baby's heartbeat anytime!Sabrina's Pregnancy Page useful information and great links
Bedrest/high risk pregnancy
http://members.aol.com/MarAim/bedrest.htm
www.childbirth.org
While most pregnancies are problem free, a few will have problems.
www.miraclebabies.org
Are you a parent (or hope to be soon) of a long-awaited baby after experiencing infertility? Are you on bedrest, or expected to deliver prematurely? Do you have a preemie in your life? The Miraclebabies mailing list is a group that has an atmosphere of support and friendship, where all sorts of topics can be discussed, including all aspects of infertility, ways to cope while baby is in the NICU, and parenting issues.
Moms On Bedrest
A site with entertainment, links, inspiration, and bedrest graduate stories.
An overview of uterine abnormatlities including: Septate uterus,Unicornuate uterus,Bicornuate uterus and Uterus didelphys
A description and answers to questions about these conditions.Mullerian Anomalies (or Congenital Uterine Anomalies) Support Group
An on-line group with a plethora of links and articles and a New Member buddy-matching program.
DES Action USA
A national, non-profit consumer organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals.
http://www.desaction.org/
Pregnancy and Diabetes: A place to find support!
http://clubs.yahoo.com/clubs/pregnancyanddiabetes
Type 1 diatebes and complications that arise in pregnancy.
http://www.dartmouth.edu/~obgyn/mfm/PatientEd/diabetes1.htmlInformation on Type 1 Diabetes from The American Diabetes Association
http://www.diabetes.org/main/type1/living/sex_pregnancy/diab_pregnancy.jspA downloadable guide called "Can I Have A Healthy Baby?" for Type 1 Diabetecs.
http://www.realitycheck.org.au/babies.htm
www.ectopicpregnancy.com A complete ectopic pregnancy site with links and support groups.
www.advancedfertility.com/ectopic.htm
Detailed information about ectopic pregnancy, the symptoms, causes, and treatments.
www.ffntest.com/ A complete guide to the fFN test used to predict pre-term labor in women from 22 to 35 weeks of gestation.
Group B Strep Association - educates the public about GBS infections, promotes prevention of neonatal GBS through routine prenatal screening, and promotes the development of the GBS vaccine. PO Box 16515, Chapel Hill, North Carolina 27516. (919) 932-5344.
HELLP Syndrome Site
http://hometown.aol.com/hellp1995/hellp.html
Information and newsletter about HELLP Syndrome.Preeclampsia And HELLP Syndrome
http://www.dartmouth.edu/~obgyn/mfm/PatientEd/PIH_HELLP.html
Information on HELLP Syndrome and Preeclampsia from the Dartmouth-Hitchcock Health Center.
Itchymoms.com
Intrahepatic Cholestasis of Pregnancy or Obstetric Cholestasis is a liver
disease that is specific to pregnancy.
HuGs
Hyperemesis Gravidarum SurvivorsTake Two Crackers and Call Me In The Morning
http://www.morningsickness.org/Hyperemesis.org
http://www.hyperemesis.org/
http://www.geocities.com/incompetentcervix/
A site with stories of cerclage successes.http://folsomobgyn.com/cervical_cerclage.htm
A complete overview of the cerclage procedure and what to expect.http://www.birthsource.com/proarticlefile/proarticle38.html
An overview of cerclage written by perinatalogists.
Perinatal.com
Welcome to Phoenix Perinatal Associates. If you have had problems with this or past pregnancies, have patients with problem pregnancies, or simply have questions about pregnancy, then you have come to the right place.Dr Jick.com
Whether you are my existing patient, a new patient, a prospective patient or someone else's patient, here is your resource for many items of interest.Reproductive Immunology Associates
As innovators and leaders in the diagnosis and treatment of immune related miscarriages, the physicians, medical technologists and support staff have a unique and unduplicated experience in working with couples and their physicians. Our daily commitment is to provide an environment where people who have suffered the agony and frustration of frequent miscarriage can come for information, evaluation and results.
Club Previa
Visit Club Previa to get the Low Down on Placenta Previa!
PreEclampsia Foundation
The PreEclampsia Foundation is dedicated to raising public awareness and providing support for those whose lives have been touched by pre-eclampsia and other hypertensive pregnancy disorders.
Helen's Pre-eclampsia, APEC and discussion group page
The Pre-E Site.
This site contains information about all forms of pregnancy induced hypertensive disorders as well as resources.
Childbirth Solutions PROM Page
PROM stands for (Preterm) Premature Rupture Of Membranes.PROM Mailing List and Chat Room<
A group dedicated to helping others who are now experiencing or have experienced a PROM in pregnancy.
PUPPS or Pruritic Urticarial Papules and Plaques of Pregnancy
A complete explaination of PUPPS and treatments.
The International Vasa Previa Foundation
The goal of the IVPF is to educate the public and medical community about vasa previa.
The Alliance of Genetic Support Groups - a national coalition of genetic consumers, professionals and voluntary organizations committed to promoting the interest of children, adults, and families with genetic disorders. 4301 Connecticut Ave NW Suite 404, Washington DC 20008 (800) 336-4363.
March of Dimes Birth Defects Foundation - 1275 Mamaronek Ave., White Plains, NY 10605. (914) 428-7100.
Abiding Hearts - support group for parents continuing pregnancy after adverse prenatal diagnosis (fatal or non-fatal). Newsletter, referrals, Guide for parents, family, caregivers and friends. Contact Parent and Grandparent Listings.
P.O. Box 904, Libby, MT 59923 PH: (406) 293-4416
e-mail: support@abidinghearts.comMothers United for Moral Support (MUMS) Organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition. (414) 336-5333. MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality, or health condition.
Posterior Utheral Valves PUV Parents who have children or are expecting a child with some form of congenital urologic anomaly such as PUVs (any sort of obstructive uropathy), Prune Belly Syndrome, VATERS, or other problem with similar symptoms before and/or after birth, can find others who understand the wide variety of issues that can come from the various problems brought on by these problems.
National Organization for Rare Disorders NORD offers unique and specific information on rare conditions. P.O. Box 8923, New Fairfield, CT 06812-8923, or call (800) 447-6673 (outside CT) or (203) 746-6518.
www.trisomy.org Support Organization for Trisomy 18, 13, and Related Disorders- (800) 716-7638.
Kids With Heart (KWH)
A congenital heart defect support group which offers support to families of children with congenital heart defects.
Center for Fetal Diagnosis and Treatment
The Children's Hospital of Philadelphia established a Center for Fetal Diagnosis and Treatment in 1995. The Center provides integrated, multidisciplinary care for mothers carrying a fetus with a known genetic or anatomic birth defect that requires therapy before and after birth.
Pregnancy and Lupus
This site has complete information on Lupus as well as Lupus in pregnancy.Free Lupus Information Packet
Packet and other information from the Lupus Foundation of America.Lupus Information And Free Booklet
Information from National Institute of Arthritis and Musculoskeletal and Skin Diseases. This site contains information, and resources on similar diseases. Free booklets are offered.
INCIID:The InterNational Council on Infertility Information Disseminationt
(INCIID---pronounced "inside") is a nonprofit, consumer advocacy organization dedicated to helping couples explore their family-building options.Resolve
Infertility support group
American Infertility Association
An excellent resource covering many aspecects of infertility.PregnancyMD.org
PregnancyMD.org aims to promote greater awareness to the public on the cause, diagnosis and treatment modalities of infertility. It offers the most comprehensive ONLINE fertility investigation services available. Using proprietary software, PregnancyMD can offer the opportunity for members, with or without their spouses, to investigate, and be provided with the cause of their infertility, the recommended treatment and the opportunity of assistance in overcoming their infertility.
Depression after Delivery
P.O. Box 1282
Morrisville, PA 19067
(800) 944-4PPDPostpartum Support International
927 North Kellog Avenue
Santa Barbara, CA 93111
(805) 967-7636
Pregnant With Cancer
The Pregnant With Cancer Support Group is to let you know that you are not alone. They have set up a network of women from across the United States who were once given the same diagnosis. These women are here to lend support, share their experiences and offer hope.
http://thefibroidplace.com/
The Fibroids Place This site has information about fibroids both during and after pregnancy.
Pregnancy After Miscarriage
This website is dedicated to assisting women experiencing a miscarriage, trying to conceive again, or are pregnant after enduring a loss or losses.
Other Rare Conditions OB/GYN Net. Excellent site with resources on many conditions
The Florida Institute for Fetal Diagnosis and Therapy
The Florida Institute for Fetal Diagnosis and Therapy is a non-profit organization established to provide patients and physicians with the latest and most advanced resources in the field of Prenatal Diagnosis and Therapy. These include PROM (Premature Rupture Of Membranes) and Twin Twin Transfusion Syndrome.
Support For Hysterectomy After Childbirth
This group gives support to women who have had a hysterectomy directly as a result of childbirth or immediately after the birth of a baby.
Sans Uteri
Support for women and their families after a hysterectomy.
Immune (Idiopathic)Thrombocytopenic Purpura & Pregnancy
ITP, Idiopathic Thrombocytopenic Purpura, also known as Immune Thrombocytopenic Purpura, is classified as an autoimmune disease.
Center for the Study of Multiple Birth - mail-order publications, medical referrals. 333 E. Superior St., 476 Chicago, IL 60611 (312) 266-9093.
Monoamniotic Monochorionic Support Site
This site has been created and supported entirely by volunteers, parents, and expecting parents that have been diagnosed with a monoamniotic pregnancy.
Mothers of Supertwins (MOST)
- A non-profit organization devoted to education, information and resources for families expecting triplets or more. Newsletter, parent pack, networking. For more information write or call, MOST, P.O. Box 951, Brentwood, NY 11717-0627. (631) 859-1110. E-mail Maureen@MOSTonline.org .Multiplicity
This page lists organizations, print & website resources that may be helpful for parents facing the challenges of raising multiples, working through loss of one or more multiples, or raising one or more premature or special needs child(ren).National Organization OF Mothers Of Twins Clubs
Official site of the NOMOTC, a non-profit, nation-wide support group for parents of twins and higher order multiple birth children.Preemie Twins
Resource to both parents of multiples and/or parents of premature infantsTriplet Connection
- Sharing and caring network for higher multiples. P.O. Box 99571, Stockton, CA 95209. (209) 474-0885.The Twin to Twin Transfusion Syndrome Foundation
".... dedicated to providing educational, emotional and financial support to families and caregivers before, during, and after pregnancies diagnosed with twin to twin transfusion syndrome."
Twin Hope
"..... is a voluntary private non-profit organization founded in 1994 by Jill MacNiven and is dedicated to the service of families, to the education of the public and professionals, and to broaden the awareness of Twin-to-Twin Transfusion Syndrome (TTTS) and other twin related diseases."Parents of Twins/Multiples
Frequently Asked Questions, answered by the parents on the Twins and Supertwins mailing list. Access the FAQs or join the listTwins Help! is dedicated to helping multiple birth families with high quality information and products.
Triplets email list
How to join, etc.Twins Magazine
- bimonthly publications for families of multiples. (800) 328-3211.Twin Services Consulting
- professional staff provides twin families information, advice and moral support to help them raise healthy, happy children. P.O. Box 10066, Berkeley, CA 94709 (510) 524-0863. www.twinservices.orgTwin Stuff
Twinstuff's goal is to provide twins, other multiples and their families and friends a fun and comprehensive web portal to learn more about why it's special to be a twin.Vanishing Twin Syndrome
This site is dedicated to giving information, support and resources about Vanishing Twin Syndrome, a condition that affects approximately 1 in 8 pregnancies.
Sidelines Loss and Grief Support Resources
Depression After Delivery
Depression After Delivery, Inc. is a national, non-profit organization which provides support for women with postpartum depression. Its focus includes education, information and referral for women and families coping with mental health issues associated with childbearing, both during pregnancy and postpartum. www.depressionafterdelivery.comOnline Postpartum Depression Group
If you or someone you know is a new mother suffering from feelings of sadness, depression, worthlessness, hopelessness, fatigue, anxiety, changes in sleep patterns or appetite, and/or poor concentration, Post Partum Depression (or PPD) could be the cause. We hope the information gathered here will serve as a resource for you.The Postpartum Stress Center
The Postpartum Stress Center specializes in the treatment of postpartum illness by offering these services to women and their families. www.postpartumstress.comThe Center For Postpartum Health
AT THE CENTER FOR POSTPARTUM HEALTH, we address the physical and emotional needs of the pregnant and postpartum woman and her family. We help facilitate the transition from pregnancy to parenthood. www.postpartumhealth.com
See the Preemie Resources here.
Doulas Of North America
Information about the services provided by doulas and a nationwide listing of members.BabyBeat.Com
Listen to your baby's heartbeat at home. Use the same high-quality Doppler the doctor's use to pick up your baby's heartbeat at 10-12 weeks. Phone Toll Free: 888-758-8822
In the U.S., you may qualify for financial help from your local TownshipTrustee, WIC and Medicaid, especially if time off from work due to pregnancy complications has significantly changed your financial status, and depending on the gestational age or weight of your baby. Also, look into the Katie Beckett Waiver, a federal waiver named for a little girl who’s family made too much to qualify for government aid but who’s insurance was not sufficient to cover her unusually high medical bills. The waiver is for families who do not qualify for Medicaid or SSI due to family income above the maximum usually allowed for these benefits.
You can get WIC information here.American Council of Nanny Schools
Delta College, Room A-67
University Center. MI 48710
517-686-9417
A non-profit coalition of accredited nanny schools that maintains a National Nanny Registry of all graduates from their programs.Au Pair Homestay USA
1015-15th Street, NW, Suite 750
Washington, DC 20005
202-408-5380
A national placement agency for au pairs, sponsored by the Experiment in International Living.Au Pair in America
102 Greenwich Avenue
Greenwich, CT 06830
800-727-2437; 203-869-9090
A national placement agency for au pairs, sponsored by the American Institute for Foreign Study.International Nanny Association
P.O. Box 26522
Austin, TX 78755-0522
512-454-6462
An organization that publishes a directory of nanny placement agencies and training programs; offers information on health insurance for nannies and provides profiles of placement agencies screening practices.National Association of Child Care Resource & Referral Agencies
2116 Campus Drive, S.E.
Rochester, MN 55904
507-287-2220
A national organization representing local Resource & Referral agencies across the country.National Nanny Network
6065 Roswell Road, Suite #632
Atlanta, GA 30328
800-783-4619
A national placement and referral agency for families looking for a nanny.Credit and employment problems can be resolved through NFCC. They will help find a local, non-profit counselor to provide information on how to handle credit/debt problems. NFCC, 8701 Georgia Ave., Suite 500007, Silver Spring, MD 20910 or call (301) 589-5600.
Women's Legal Defense Fund - if you have questions regarding discrimination caused by a pregnancy disability; call the WLDF, (202) 986-2600.
National Partnership For Women And Families
Promoting fairness in the workplace, access to quality affordable healthcare, and polices that help women meet the demands of work and family.
Miscellaneous Sites
Entertaining An Older Child While On Bed Rest Babycenter.com suggestions on how to entertain an older child while on bed rest.
Neopets.com
A great free site you can play with children of all ages where they make a virtual pet, open a store, play games, and much more!